The Dr. Bob Show Transcript
 

The Mystery of Fibromyalgia


Dr. Bob's Special Guest: Dr. Fred Wolfe, Rheumatologist


Introduction

Dr. Bob: And welcome to The Dr. Bob Show. I hope you've had a healthy week. We appreciate your watching The Dr. Bob Show, learning facts to make your life healthier and happier and we hope you come back and watch this show every week so that we can give you that health information that you need. We're going to be spending most of the time on this show taking about aches and pains, a condition called fibromyalgia (much more common than people think) and of all the shows that I've done, this is the one topic that I get more requests to give more information on. We have an outstanding guest. My guest is Dr. Fred Wolfe. Dr. Wolfe is a board-certified rheumatologist and deals with fibromyalgia in his practice.

Hello, I'm Dr. Robert Overholt and I will be your host for the next 30 minutes on The Dr. Bob Show. Later on in the show we'll be talking about SVT. What type of fast heart rate does that mean? What's the difference between migraine headaches and tension headaches, and which one do I really have? What are some of the causes of hoarseness? You may be surprised of the cause of your hoarseness. And we will be talking about other topics like at what age should you be worried about getting coronary artery disease? So, you'll want to stay tuned. We have huge amounts of information for you. and while you're getting ready for The Dr. Bob Show remember, you should have been exercising seven days a week at least 20 minutes, starting the day off with a good breakfast of fruit and fiber, eight hours sleep if you can, and most of all, laughter in your life. Stay tuned-wonderful show ready for you.

Dr. Bob: We're talking with Dr. Fred Wolfe, board-certified rheumatologist, and we're talking about a condition called fibromyalgia. Do you ever wake up sort of stiff in the morning, sort of achy, sort of like your muscles are stiff? A lot of times people do that. Do you have fibromyalgia? Fred, welcome to The Dr. Bob Show.

Dr. Wolfe: Thank you Bob.

Dr. Bob: Everybody aches a little bit. What is fibromyalgia?

Dr. Wolfe: Fibromyalgia is a specific disease where there are specific areas called tender spots in the body that hurt tremendously and it causes disability to the patient in their daily functions.

Dr. Bob: When you say it hurts tremendously, we've all had pain where we've fallen down, that type situation. How do people describe this pain? How do you know if you have this type pain?

Dr. Wolfe: The pain is described as all over, every day, all the time. It's a draining pain. Patients will describe it around the elbow as a constant burn with an ache that goes up and down the arm but the burn is at the elbow and the ache is in the muscles.

Dr. Bob: When you examine this patient, when you examine the elbow and you examine the muscle, what do you find on the physical exam?

Dr. Wolfe: The joint is fine. The joint moves very well. There is no swelling in the joint but the tenderness is around the areas where the muscles attach to the bone. And these areas are the tender spots and they're located on the inner and outer aspect of the elbow region.

Dr. Bob: Now, with fibromyalgia there are, as you mentioned, tender spots.

Dr. Wolfe: Correct.

Dr. Bob: There's 10 or 11 spots that are classic?

Dr. Wolfe: Correct.

Dr. Bob: What are some of those spots?

Dr. Wolfe: Some of those spots are at the base of the skull. However, these big muscles at the back of the shoulder are called the trapezius muscles.

Dr. Bob: And you just sort of, you sort of, you sort of get stiff or they just hurt like mad?

Dr. Wolfe: They hurt.

Dr. Bob: They hurt?

Dr. Wolfe: They truly hurt and while patients are stiff, the pain is the big thing that drives them to see a doctor.

Dr. Bob: Neck, shoulder, where else?

Dr. Wolfe: On the outer side of the hip, the inner side of the knee. Again, it is not the joint. It is the area around the joint where the muscles insert into the bone and attach to the bone.

Dr. Bob: Now, when we, if we do a biopsy of those, what do we find?

Dr. Wolfe: Absolutely nothing.

Dr. Bob: And that's…

Dr. Wolfe: Everything looks normal.

Dr. Bob: And one would think that you would see inflammation. So, what stimulates… do we know what stimulates the nerve fibers to say "ouch, I'm hurting?"

Dr. Wolfe: I wish we did. The cause, the etiology of fibromyalgia is totally unknown.

Dr. Bob: Any lab work that's abnormal?

Dr. Wolfe: No laboratory tests are abnormal and that's very important to remember because patients with early rheumatic diseases such as rheumatoid arthritis or lupus arthritis have abnormalities in the blood, but patients who have primary fibromyalgia have no abnormalities in the blood at all.

Dr. Bob: Is it a diagnosis of exclusion or do you go to those tender points and say, you know, "I understand what's going on?"

Dr. Wolfe: The American College of Rheumatology has tried to put together some criteria saying that you must have six tender points that are specifically tender and you need to have some alteration of sleep pattern and you need to have the negative blood work up.

Dr. Bob: Now, when you say sleep pattern, what is the sleep pattern of people with fibromyalgia?

Dr. Wolfe: People with fibromyalgia never go into deep sleep.

Dr. Bob: Because of pain?

Dr. Wolfe: Good question. Whether they don't go into sleep because of pain or whether they don't go into sleep and that causes the pain is unknown. There is a lot of research going on with the sleep centers to try to figure out which is the chicken and which is the egg.

Dr. Bob: Now, frequently if a doctor hears a patient say, "I ache all over" and they get blood work and the blood work is normal, do they tend to say this is a psychological problem and do a disservice to this patient or what's the deal?

Dr. Wolfe: Well, doctors are human too. I hate to inform you, but they are.

Dr. Bob: We have our frailties.

Dr. Wolfe: And if you can't find anything, then your first impulse might be to say, "you're kinda crazy." These patients are not crazy. Many of them are full-time workers who are going to work. They do not produce as well because they hurt but they are very active people. They're young mothers. They are men in positions of stress in their job, women in stress. So, it's not like you can say these people are crazy sitting in a corner. And you have to be aware that something else could be going on.

Dr. Bob: More frequent with older person? Younger person?

Dr. Wolfe: More frequent in younger people.

Dr. Bob: Male or female?

Dr. Wolfe: More frequent in female.

Dr. Bob: And more… so, sort of young females?

Dr. Wolfe: Young mothers, females.

Dr. Bob: With children, without children?

Dr. Wolfe: Females. Originally described as young mothers with children who have altered sleep patterns…if you've got young children. And so, whether that sleep pattern is what gets the trigger started or whether something else is, we don't know.

Dr. Bob: Is there a good treatment available for this illness?

Dr. Wolfe: There is treatment.

Dr. Bob: And that's what we're going to be talking about. We're going to be talking about the type of treatment that we have available for this very, very difficult problem. But first, let's talk to a patient that's had fibromyalgia and let's introduce you to how bad this can be.


Patient: I've had a lot of joint pain, muscle pain, overwhelming fatigue, real bad sleep disturbance. It's chronic pain. It's always there. It never goes away completely and one day it may be in your shoulder. The next day it may be in your hip. The next day it may be in your lower back. It sort of moves around and some mornings I roll over and I don't know if I'm going to be able to get up out of bed or not. It makes it difficult to get through your day every day because when I wake up in the morning, I'm very stiff and very sore and it takes me quite a while to loosen up and be able to motivate. And sometimes it makes it difficult getting dressed. Sometimes I have difficulty getting in and out of the car because my problems seem to center in my lower back and my hips. It's painful to walk, sometimes. There are days where you can't be comfortable sitting. You can't be comfortable lying down. You can't be comfortable standing up and you just sort of have to go from position to position, to position to find some comfort and some peace. And it makes doing the things that you used to do for yourself and didn't even think about (like cooking dinner or washing dishes or handling laundry) more difficult. You have to be creative to be able to do those things. I had heard it called an invisible disability before and it truly is invisible because you can't see the cause for it and yet it's still there and it covers your life.


Dr. Bob: What an interesting story. If you have pain, aches, muscle pains, you may have fibromyalgia and remember, there is treatment available and that's what we're talking about.

Dr. Fred Wolfe, treatment? What is the treatment for this illness that has got muscle tender points, no positive laboratory work, biopsies are negative, but fits into a regular pattern? What's the treatment?

Dr. Wolfe: Treatment is a program of exercise, trying to get them in a regular sleep pattern, and trying to get them to develop a program for themselves of managing their lifestyle. With the exercise, you start gradually and you build.

Dr. Bob: Now what is gradual? When you tell somebody let's do a little…you know…what is gradual exercise?

Dr. Wolfe: Well, some of my patients can start with five minutes and then the pain gets very severe.

Dr. Bob: Muscle-lifting weights-or walking?

Dr. Wolfe: We're talking either one. Walking. We usually start with stretching, very mild exercises, or we may start with a one-pound weight that the patient can actually sit and do. And they start with five repetitions and then they go to six repetitions. They may do five minutes, six minutes in the next week, seven minutes the next week, and gradually build an exercise program that they can tolerate. They may go up, up, up and then reach a plateau that they can't get over for two months and then they can start up again.

Dr. Bob: It must be gratifying if somebody begins to be able to do things like that that they weren't able to do.

Dr. Wolfe: Many patients are and they're thrilled and they're impressed with themselves that they can actually do something for themselves and we like to encourage that because that's part of modifying your life.

Dr. Bob: Now, do you see people, as they are gradually increasing their exercise, that some of their pain goes away?

Dr. Wolfe: Yes. Very definitely and some of the patients with an exercise program they've worked on may be on a treadmill for an hour and have no trouble with pain and then Uncle George or Aunt Petunia gets sick and they quit and the pain comes back.

Dr. Bob: That's very, very… that's interesting. Let's talk about sleep pattern. Where does sleep fit in this? I know if we don't get enough rest, we don't feel good.

Dr. Wolfe: The thought is that these patients never get into what is called "delta wave" or the really deep sleep and therefore, perhaps, these muscles never relax and that helps increase the pain. So you give them drugs to help them get into that deep sleep. We're not talking about painkilling drugs. We're not talking about addicting drugs. We're talking about drugs that help patients get into a sleep pattern.

Dr. Bob: Now, specific medications-what would you use?

Dr. Wolfe: One that has been used across the country for many years is a drug called Amitriptyline and this drug is not addictive and does allow patients to get into a sleep pattern. You may need this dose of the drug and as they get better and start exercising, they can decrease the dose of the drug. So, it's a program. The usual medicines for arthritis, the anti-inflammatories like Motrin, Ibuprofen,
Naproxen-those don't work. You really have to get the exercise and the sleep pattern, those two things. Many patients have to make a change in their lifestyle to get the time to do that.

Dr. Bob: How much sleep do you want this person to get?

Dr. Wolfe: I would like six to eight hours. I would be happy with six hours straight but be really happy with eight.

Dr. Bob: Now, if we get six hours sleep, maybe eight hours sleep, and we're exercising and we're increasing, what do you expect out of this patient? How…what percent will get better? What else do you have to do as they further treatment?

Dr. Wolfe: I would like to see those patients get better, obviously, but I would say probably about half the patients with whom we're working with the diagnosis of fibromyalgia get significantly better as long as they are working with the exercise program and taking medicine. That other 50%, some of those even when they work hard, they can't get over the hump and that's a very difficult group to us.

Dr. Bob: Does a psychiatrist help these-with biofeedback… I'm thinking of some way where the mind begins to control the body. What's the experience?

Dr. Wolfe: Good experiences with biofeedback. There are physical therapists that can teach biofeedback. There are psychologists that can teach biofeedback. Psychiatrists have helped us with some of the medicines that help the brain understand pain and again, you use this whole team approach of the therapist to help with exercise. The biofeedback helps with rest, and managing muscles with the medicines helps you sleep and sometimes with a psychiatrist to help with pain understanding.

Dr. Bob: Do you get rewarding stories when you spend time with a patient like this that's got a devastating illness and you help them through their life?

Dr. Wolfe: Of course, and you're really excited that you see them and they're doing great and they come back and they think you have really helped them and then again, something happens. They fall off the wagon of exercise. They start taking care of the twins that were just born to their daughter and suddenly, it's like it's all coming back. Help me, I can't stand it. To come back, I'm too busy.

Dr. Bob: Yeah, it's, it's a very frustrating illness. Fred Wolfe, thank you for taking of your time to come and teach us about this illness that is so pervasive and so many people can be helped by it with a good understanding physician like yourself. I've always enjoyed you on The Dr. Bob Show.

Dr. Wolfe: Thank you Bob.

Dr. Bob: Will you come back and can we talk about osteoporosis?

Dr. Wolfe: I would be delighted to.

Dr. Bob: And I look forward to that time. What a wonderful show! You stay tuned. We've got lot more information. We've got another story to tell you about. But also we're going to be coming back talking about causes of hoarseness. We'll be talking about SVT. That's a type of fast heart rate. At what age should you start worrying about coronary artery disease? We've got a lot of information so you stay tuned. I've got a lot to tell you.


Announcer: Up next on The Dr. Bob Show fitness expert Missy Kane has some tips to help you achieve your personal best. And later, Dr. Bob answers his mail.

Missy Kane: Moderate exercise is the key for patients with fibromyalgia. The real key with this though is balance. You don't want to overdo it. That can make the problem worse. So a lot of doctors recommend you find the right exercise for yourself. Maybe walking three days a week, just 15 minutes at a time, might be helpful. And a lot of folks find that really nice, slow exercises, a good stretching class where you're really exaggerating the movement, nothing too fast, nothing too hard. Another thing to try for people with fibromyalgia is, there're a lot of classes is many cities called PACE-that's people with arthritis can exercise. Some of the exercises they do are all in a chair. They may do ankle rotations. They may do easy knee lifts in a chair. Good arm rotations-like this-and sometimes these classes are 20-30 minutes and they can make a big difference with people's pain tolerance because you want to keep those joints moving. You need exercise at least three to four times a week but, again, work with your doctor and find the exercise that's right for you. Too much is harmful. Too little, you will really suffer the consequences. For The Dr. Bob Show, I'm Missy Kane.


Dr. Bob: I want to thank Dr. Fred Wolfe. A wonderful discussion on fibromyalgia, a devastating problem, a lot of hope, a lot of good treatment. So be sure, if you've got some symptoms, that you get on a good program with your doctor.

Dr. Bob: And now we've got some questions from you, the viewer, I think you are really going to enjoy. I've got about six or seven here. Let's see which one we'll pick first.

 

Question # 1: "Dr. Bob, what is SVT? My doctor says my heart runs away and I've got SVT. What does that mean?"

Dr. Bob: Well, it's called; listen to this word, supraventricular tachycardia. Big old long medical words. We used to call this PAT, paroxysmal atrial tachycardia but what this is, this is in the area of the heart that suddenly triggers off electrical activity, that the heart beats 150, 160, 170 times a minute. Very common in young people, very common in women, very common in women that have mitral valve prolapse, a very common murmur that we hear. Now, there are treatments available for SVT. It's a very very difficult problem. We'll want to be sure that we stay away from caffeine. We want to be sure that we eat properly and that we sleep properly. We want to be sure that we stay away from decongestants that are frequently in medications. And then sometimes the treatment is with medications to help regulate the heart or even some radio-frequency ablation, some more sophisticated, to get that area of the heart where it's not causing those abnormal impulses. If your heart races away, you can help your doctor by taking your own pulse. People frequently don't know how to take their own pulse. You feel on one side of the neck right at the angle of the jaw right here. Take your pulse now. See if you can feel that pulse, count it for 15 seconds, multiply by 4. And your wrist is another area. Right on the side of the head you can feel; in the groin there is an area; on the top of the foot. These are some areas that you can take your pulse. This is the best one for a fast heart rate. Help your doctor by telling him if it's a regular, fast heart rate and how fast it is. You'll help him a lot.

Announcer: Coming up next on the Dr. Bob Show reporter Hallerin Hilton Hill gives us some tips for living a healthy life. And later Dr. Bob answers his mail.

Hallerin Hill: Parkinson's Disease is a nervous system disorder that effects the middle aged and the elderly. There are some very popular Americans you might recognize that deal with Parkinson's Disease. Michael J. Fox, former US Attorney Janet Reno, Pope John Paul the II, Mohammad Ali. For the million or so people that struggle with Parkinson's Disease, every day activities like walking or standing can be very painful. It causes many to turn to medication to relieve the tremors or the slow movement or the muscle stiffness but some are now turning to surgery as an answer, a way to regain control of their lives. Several surgical treatments are available to Parkinson's patients. One of these surgical treatments is called Pallidotomy. This process creates lesions on a portion of the brain which interrupts some of the neuro pathways. The result is the improvement of the symptoms of tremors and rigidity. Pallidotomy and other surgical procedures are becoming more and more popular because of a couple of things. First of all with medications, some people have severe side effects or they've built up incredible resistance to the drugs. If you would like to know more about treating Parkinson's, the Internet is a great place to start.

For The Dr. Bob Show, I am Hallerin Hilton Hill.


Conclusion of Interviews
Dr. Bob: I want to thank Dr. Bill Paulsen for a wonderful discussion on tremors and on Parkinson's disease. If you have a tremor, shuffling gait, rigidity, see your doctor and work out that problem.

And now some information I think you, the viewer, will want to know from some questions we've had:


Letters

Now, we're going to be talking about questions from you, the viewer. One question is...

Letter #1: "Dr. Bob, which number in the blood pressure is most important?"

Response #1:
Great question. A lot of times the doctors expect people to know what a normal blood pressure is. Do you know? Most people don't. 120 over 80 is classically a normal blood pressure. The upper number, if it's over 135 or 140, that's getting into the high level. Or if the lower number is above 85, some people say over 90, it is considered higher than "normal." Know what your blood pressure is. How often have you had your blood pressure taken and which is the most important? Well, there're lots and lots of studies. The lower number, the diastolic, we used to think was the most important and we really treated it aggressively, the diastolic blood pressure. But we now know that the systolic, the upper number, is also just as important in preventing heart failure, heart attacks and stroke. Be sure you know your blood pressure and if it's elevated, don't make any excuses-get it under control.

Letter #2:
"Dr. Bob, what is the treatment for vertebral fractures in osteoporosis?"

Response #2:
Wow, what a question! Well, first of all, what's osteoporosis? That's a condition where the calcium, leaves the bones and the bones become very brittle. Very, very common as we get older. Men are having this problem as well as women. Women lose calcium out of their bones rapidly at the first five years of menopause or after menopause starts and so they're prime candidates for osteoporosis, especially if you're a small person. It's the overweight person, (the only time that I really know that if they are overweight it really helps) because the pounding of being overweight on the bones seems to keep calcium in the bones. But in people who do have osteoporosis, there are 1.2 million fractures, and of those 1.2 million, 700,000 fractures are vertebral fractures. That's the vertebral bodies that are at the base of our backbone there and then the vertebra in the back and they actually will collapse because of osteoporosis. There is now a treatment called vertebroplasty and this is where a radiologist with a special instrument with a little straw (similar to a cocktail straw) can put some substance into the vertebra like cement that will give it new structure and new form, new strength. Hopefully, will keep new fractures from occurring. It takes away some of the pain and the incapacitation that occurs with this terrible problem-with this terrible disease. So, vertebroplasty is what you want to be looking for. Talk it over with your doctor…putting cement in the vertebra.


Letter #3:
"Dr. Bob, how young should a person begin to worry about coronary artery disease?"

Response #3:
We've got an epidemic of obesity. The epidemic is in young people and young people are having elevated cholesterol and diabetes, the two things that lead to heart disease. So at a very young age we need to be considering risk factors. What's the family history? Is there a family history of cholesterol? Do you know what your cholesterol is at a lower age? And I really think earlier and earlier we ought to get a baseline cholesterol on young people. Do we know what the good cholesterol and the bad cholesterol are? If you get that information at an early age, it will help you and your doctor guide you along. We now know and we're now seeing people at a very young age that are having active coronary artery disease and so, we need to be careful at an earlier and earlier age. And your doctor can help get you on a program that will help you establish how healthy your heart is. Remember, you should be exercising, eating right, keep your weight right, know what your blood pressure is and also know what your cholesterol is.


Letter #4:
"Dr. Bob, what are some of the causes of hoarseness?"

Response #4:

"Well, it's a very common problem. Frequently it's somebody like me that talks too much. Preachers talk too much. Singers sing too much and sometimes they'll get a nodule. People with postnasal drainage. Who have nasal drainage and are frequently clearing their throat-they get hoarse. They're usually hoarse in the morning and it gets better as the day goes on. Somebody that has had thyroid surgery. People that have asthma that are on inhaled corticosteroids-hat can sometimes make the muscle weak that involves the vocal cords.

If you have hoarseness, if it is persistent, it can be something like leukoplakia, some little plaques that are on the vocal cord that just don't let it function properly. So if you've got persistent hoarseness, you have to get that problem worked out with your doctor.

 

Closing

Dr. Bob: And now we just have a little bit more time and I think we'll just sort of close off the show and talk about those things I think are most important to your health. Exercise. Remember what it does when you exercise regularly. It takes away stress. It will help lower your blood pressure. It will help you feel better and is a way of relieving that stress. Start the day off with a breakfast of fruit and fiber. Try and get eight hours of sleep. How wonderful it is and how great you feel with eight hours sleep! And most of all, we like laughter in your life. I hope you have enjoyed this show as much as I have.

If you have a question for Dr. Bob, write to The Dr. Bob Show - 6700 Baum Drive, Suite 1, Knoxville, TN 37919 or send your e-mail to letters at letters@drbobshow.com

 

The information presented by "The Dr. Bob Show" is intended to supplement your regular health and fitness care. It should not be a substituted for doctor supervision.

Please consult a physcian concerning your health care needs.


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